Advocacy is about empowering vulnerable people and protecting their dignity, rights and freedoms. From employment and transportation to education and housing, people living with epilepsy face these issues and many more on a daily basis.

It can be a challenge to break down the barriers that stand in the way of basic rights and freedoms, but Shine Epilepsy Support is here to help! Through advocacy, we can make a change. Join us, and make your voice heard at the governmental, legal, social, economic and institutional levels.

Overview of Epilepsy

Research in epilepsy is focused on trying to understand the process that leads the brain to have seizures as well as trying to discover new and better ways to treat epilepsy. Our ability to define the different problems that can lead to epilepsy at genetic, molecular, and cellular levels will help us to target prevention and therapy. For example, recent research suggests that some forms of epilepsy result from disorders in ion channels; drugs that influence ion channels can help to control seizures. Other research has shown that excessive immunological responses (autoimmunity) can irritate brain cells and provoke seizures, and that seizure activity can lead to increased immunological activity.

Epilepsy is a disorder, not a disease. Anything that injures the brain or affects its functions has the potential to cause seizures. Epilepsy research is directed at trying to find common pathways that underlie epilepsy. Large multicenter studies that pool data from many sites may help us to collect a sufficiently powerful set of data to better understand the genetics of why epilepsy is difficult to control in some individuals while others have bad side effects to specific medications.

Increasing public awareness about epilepsy and advocating for patients and families remains critical for improving the quality of lives for people with epilepsy NOW. Our society often discriminates or creates obstacles for individuals with medical problems, especially those with disorders that are misunderstood. And epilepsy is the paradigm of a disorder in which lack of information and misinformation is common among the general population. Increasing awareness can make the school, work, and life with epilepsy much easier and much more productive.


The overarching goal of this campaign is to reduce the epilepsy knowledge and treatment gaps in Kenya.

*Orrin Devinsky is Professor of Neurology, Neurosurgery, and Psychiatry at NYU School of Medicine. He directs the NYU Comprehensive Epilepsy Center and the Saint Barnabas Institute of Neurology and Neurosurgery. He also currently directs the Phenome Core for the Epilepsy Phenome Genome Project. Orrin founded Finding A Cure Against Epilepsy and Seizures (FACES) and co-founded and the Epilepsy Therapy Project. He currently serves as the President of the Epilepsy Research Foundation and has served on boards of the American Epilepsy Society and local and national Epilepsy Foundation. He has published widely in epilepsy and behavioral neurology, with more than 250 articles, 50 chapters and 20 books and monographs.